New Voices

Come listen to the voices and personal experiences of people affected by birth defects.  GBD has just added a new section in our comprehensive resource inventory called "Voices."  Here you will find videos featuring a variety of people and families from around the world who have stories to inform and inspire.

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Kosala Foundation Message 

April 6, 2020

In support of those on the front lines in the coronavirus pandemic, the Kosala Duwella Foundation for Children with Special Needs created this message

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Engage with us on World Birth Defects Day

February 19, 2020

Join us on March 3, 2020 at 11AM GMT for an interactive webinar to mark World Birth Defects Day (#manybirthdefects1voice).  We will discuss your feedback and questions as well as demonstrate the app’s capabilities.  

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It is World Folic Acid Awareness Week

January 7, 2020

We wish it were no longer necessary to repeat the phrase, “Take folic acid before becoming pregnant,” but regrettably, this knowledge and practice should continue to be widely promoted.  Folic acid is key in reducing the risk of children born with neural tube defects or hydrocephalus.

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Construyendo una vigilancia robusta en toda América Latina

December 11, 2019

Dos importantes redes colaborativas sobre el estudio de anomalías congénitas en América Latina se reunieron en noviembre pasado.

La 4a Reunión de la Red Latinoamericana de Malformaciones Congénitas (ReLAMC) se celebró junto con la 51a Reunión Anual de Estudio Colaborativo Latinoamericano de Malformaciones Congénitas (ECLAMC), en Caxias do Sul, Brasil, del 3 al 8 de noviembre de 2019. Registro miembros, profesionales de la salud y estudiantes vinieron de toda América Latina, bien como de Europa y Estados Unidos.

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Building robust surveillance throughout Latin America

December 11, 2019

Two prominent networks that study congenital anomalies in Latin America met last November.

The 4th Meeting of the Latin American Network of Congenital Malformations (ReLAMC) was held in conjunction with the 51st Annual Meeting of Latin American Collaborative Study of Congenital Malformations (ECLAMC), in Caxias do Sul, Brazil from November 3-8, 2019. Registry members, health professionals, and students came from throughout Latin America, the USA, and Europe.

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Free Birth Defects Training App Goes Live

October 30, 2019

Professor Helen Dolk is on the go, taking the Global Birth Defects app to our partners and interested health care providers in Latin America.  She is one of the leads on our GBD initiative and a champion for mainstreaming birth defects surveillance into wider surveillance efforts.  This week she was in Cali, Colombia at the ZikaPLAN consortium meeting where she presented...

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Baby's First Test

December 5, 2019

In our effort to constantly update our comprehensive resource inventory, we have just added into our section, Information for parents (click and scroll to the bottom of this page), links to the United State's clearinghouse for newborn screening information. This...

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On the Go

October 24, 2019

Professor Helen Dolk is on the go, taking the Global Birth Defects app to our partners and interested health care providers in Latin America.  She is one of the leads on our GBD initiative and a champion for mainstreaming birth defects surveillance into wider surveillance efforts.  This week she was in Cali, Colombia at the ZikaPLAN consortium meeting where she presented...

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New Surveillance Network in Latin America—ReLAMC—Building Strength

October 22, 2019

Zika surged onto the world stage in 2015 in Brazil and within the next two years, hundreds of thousands of people had been infected and more than 3,500 babies were estimated to have experienced Zika-related birth defects in Latin America.  By 2016, WHO had declared a public health emergency.  Now, four years later, the epidemic has waned but still serves as a stark reminder of the critical role birth defects surveillance plays in the prevention and containment of disease.  In response to the need for better surveillance that the Zika epidemic highlighted...

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Dr Leke Aminkeng Demonstrates New Free App at ICBDSR Meeting

September 24, 2019

Our Global Birth Defects Research Fellow, Dr Leke Aminkeng, returned from Bratislava, Slovakia last week invigorated.  Why?  Because his presentation about our Birth Defects App was met with great enthusiasm and interest from conference participants.

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New Resource Added

August 12, 2019

We are always updating and expanding our comprehensive resource inventory to ensure it contains the tools you seek in order to develop or enhance your local surveillance system.  Today, under our Registration Manuals/Software section, we added a downloadable curriculum for health personnel on perinatal infections transmitted by the mother to her infant

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What tools exist in diagnosis and coding?

June 20, 2019

Our Global Birth Defects initiative has gathered into its resource inventory essential atlases, manuals, and instructional tools under our Diagnosis and Coding section.  One of the ready-to-use instructional manuals—a guide for the description and classification of congenital limb defects—comes from a European surveillance network. 

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Phase I testing begins

June 3, 2019

Phase I testing of our App began June 1 and continues throughout this month.  During this phase, expert clinician reviewers will download, register, and use the Basic Version of the App.  These reviewers will provide feedback through a questionnaire that asks about the functionality, clinical content, and the utility of the App.  

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Have You Heard of ECLAMC?

May 28, 2019

Have you heard about the birth surveillance network in Latin America called ECLAMC?  ECLAMC stands for Estudio Colaborative Latino Americano de Malformaciones Congénitas—Latin American Collaborative Study of Congenital Malformations.  Their network of 35 hospitals voluntarily register infants with malformations with the aim of the prevention of birth defects through research. 

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Looking for Resources?

May 15, 2019

Did you know that our website contains a comprehensive resource inventory for improving congenital anomaly surveillance in low-resource areas?  We have a section dedicated to registration manuals and software.

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Teratology Webinar April 10, 2019

March 28, 2019

Webinar: "Communicating with Others: What Is a Teratogen?" featuring Dr. Anthony Scialli - April 10 at 11 am Eastern.  The webinar is hosted by the Teratology Society in collaboration with the American College of Toxicology, Organization of Teratology Information Specialists, and National Birth Defects Prevention Network. This webinar is free and open to anyone, but registration is required.

Learn more & register here


Workshops Promote Zest for Fun

February 28, 2019

The newly launched Global Birth Defects website has been funded by ZikaPLAN. We are therefore happy to mark World Birth Defects Day by highlighting actions to address birth defects caused by the Zika virus. Today, we throw the spotlight on the outreach activities of the Zika Engagement and Support Team (ZEST).

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World Birth Defects Day is fast approaching!

February 25, 2019

Join the World Birth Defects Day Twitter Chat on Friday, March 1 at 11am. It is a bilingual chat hosted by the March of Dimes. On Friday, 12 questions will be tweeted out under the hashtag #ManyBirthDefects1Voice and #WorldBDday. Tweet your responses. Find more information at the World Birth Defects Day website.

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Meeting of The International Committee for Congenital Anomaly Surveillance Tools

January 21-22, 2018

Our team of public health and clinical experts have been meeting to finalise the content that will be on the App we're developing. This App is intended for the description and coding of birth defects in areas and regions of low-resources.

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The launch of the Global Birth Defects Website on 12 December 2018!

December 13, 2018

Welcome. See our inventory of birth defect surveillance tools and resources.