Dr Leke Aminkeng Demonstrates New Free App at ICBDSR Meeting

September 24, 2019

Our Global Birth Defects Research Fellow, Dr Leke Aminkeng, returned from Bratislava, Slovakia last week invigorated.  Why?  Because his presentation about our Birth Defects App was met with great enthusiasm and interest from conference participants.

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New Resource Added

August 12, 2019

We are always updating and expanding our comprehensive resource inventory to ensure it contains the tools you seek in order to develop or enhance your local surveillance system.  Today, under our Registration Manuals/Software section, we added a downloadable curriculum for health personnel on perinatal infections transmitted by the mother to her infant

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What tools exist in diagnosis and coding?

June 20, 2019

Our Global Birth Defects initiative has gathered into its resource inventory essential atlases, manuals, and instructional tools under our Diagnosis and Coding section.  One of the ready-to-use instructional manuals—a guide for the description and classification of congenital limb defects—comes from a European surveillance network. 

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Phase I testing begins

June 3, 2019

Phase I testing of our App began June 1 and continues throughout this month.  During this phase, expert clinician reviewers will download, register, and use the Basic Version of the App.  These reviewers will provide feedback through a questionnaire that asks about the functionality, clinical content, and the utility of the App.  

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Have You Heard of ECLAMC?

May 28, 2019

Have you heard about the birth surveillance network in Latin America called ECLAMC?  ECLAMC stands for Estudio Colaborative Latino Americano de Malformaciones Congénitas—Latin American Collaborative Study of Congenital Malformations.  Their network of 35 hospitals voluntarily register infants with malformations with the aim of the prevention of birth defects through research. 

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Looking for Resources?

May 15, 2019

Did you know that our website contains a comprehensive resource inventory for improving congenital anomaly surveillance in low-resource areas?  We have a section dedicated to registration manuals and software.

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Teratology Webinar April 10, 2019

March 28, 2019

Webinar: "Communicating with Others: What Is a Teratogen?" featuring Dr. Anthony Scialli - April 10 at 11 am Eastern.  The webinar is hosted by the Teratology Society in collaboration with the American College of Toxicology, Organization of Teratology Information Specialists, and National Birth Defects Prevention Network. This webinar is free and open to anyone, but registration is required.

Learn more & register here


Workshops Promote Zest for Fun

February 28, 2019

The newly launched Global Birth Defects website has been funded by ZikaPLAN. We are therefore happy to mark World Birth Defects Day by highlighting actions to address birth defects caused by the Zika virus. Today, we throw the spotlight on the outreach activities of the Zika Engagement and Support Team (ZEST).

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World Birth Defects Day is fast approaching!

February 25, 2019

Join the World Birth Defects Day Twitter Chat on Friday, March 1 at 11am. It is a bilingual chat hosted by the March of Dimes. On Friday, 12 questions will be tweeted out under the hashtag #ManyBirthDefects1Voice and #WorldBDday. Tweet your responses. Find more information at the World Birth Defects Day website.

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Meeting of The International Committee for Congenital Anomaly Surveillance Tools

January 21-22, 2018

Our team of public health and clinical experts have been meeting to finalise the content that will be on the App we're developing. This App is intended for the description and coding of birth defects in areas and regions of low-resources.

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The launch of the Global Birth Defects Website on 12 December 2018!

December 13, 2018

Welcome. See our inventory of birth defect surveillance tools and resources.