June 20, 2019

Our Global Birth Defects initiative has gathered into its resource inventory essential atlases, manuals, and instructional tools under our Diagnosis and Coding section.  One of the ready-to-use instructional manuals—a guide for the description and classification of congenital limb defects—comes from a European surveillance network.  Use this guide to improve improve the documentation on each case registered which is needed for grouping limb malformations in statistical work, for identifying nosological entities and for conducting researchers on aetiological factors.

This tool was developed by the European Surveillance of Congenital Anomalies, known as EUROCAT (European Concerted Action on Congenital Anomalies and Twins) that has built its experience and expertise over the last 40 years.  EUROCAT provides essential epidemiologic information on congenital anomalies in Europe. Formed in 1979, EUROCAT’s network now consists of 43 separate congenital anomaly registries in 23 countries.  Over the years, member registries have pooled data, compared their data, and shared their expertise.  Their research has evaluated the effectiveness of primary prevention and assessed the impact of developments in prenatal screening, among other objectives. 

Find more information about EUROCAT in our Surveillance Network section of the inventory and explore our other resources.  We’d love to know what you think of our inventory and its utility.  Send us your thoughts.  We continually update our inventory so if you know of resources you think should be included, contact us.