We believe that improving the surveillance of babies born with congenital anomalies is a crucial step toward preventing babies being born with these conditions and improving the quality of life for these children. Surveillance is the continuous, systematic collection, analysis and interpretation of health-related data (information) needed for the planning, implementation, and evaluation of the practice of public health. Surveillance helps us track progress, document the impact of an intervention, clarifies the problems and challenges, and helps us set priorities to meet those challenges.
Here (see the dropdown menu when you hover over the tab "resource inventory"), we have complied an extensive body of resources for you specific to birth defect surveillance, whether you are a public health professional, clinician or researcher. Explore the various tabs (above) where you will find a wide range of useful information, tools, and links. Find expert organisations, instructional videos, diagnostic resources, manuals, training tools and more. There is even a section on information for parents.
If you have a suggestion for enhancing this resource inventory, please contact us.