The Global Birth Defects Description and Coding (GBDDC) App is for use in areas where local expertise in congenital anomaly diagnosis is scarce. The purpose of the App is to improve the description and coding of major externally visible congenital anomalies for surveillance and research.
A full description of how the app was designed can be found at Global birth defects app: An innovative tool for describing and coding congenital anomalies at birth in low resource settings - Dolk - - Birth Defects Research - Wiley Online Library
Watch our video which introduces the app and its two versions:
[Musical Credit: "Sunshine Day" by Mixund at https://mixaund.bandcamp.com]
Two versions of the App are available:
• The Basic Version (NOW LIVE/NOW AVAILABLE) is designed for use by persons with an interest in understanding/improving birth defect diagnosis or coding, including for training purposes. This version does not allow for recording of data.
• The Surveillance Version is an extension of the basic version to allow recording of anonymous data for each baby. A unique registration code for each surveillance system operating the App will be issued. After a choice of congenital anomaly has been made, the user can use the “Record Defect” button to keep a record of the text description, code, and limited other information. These data can be uploaded from the phone/tablet to a secure server, and downloaded by the surveillance system data centre. For the purpose of field testing, the surveillance version has photo taking ability and will soon incorporate videos.
If you are interested in the surveillence version of the App contact us to obtain an application form. For data protection reasons, the app is only available to surveillance systems with institutional review board approval, and procedures to obtain maternal consent if photos are taken.
Remember that this app in its present form is a tool for surveillance and research. It is not intended to replace referral of the baby for clinical diagnosis, or to inform care options requiring clinical input.
The surveillance version of the app provides a data collection tool that can be used within a well designed surveillance system, with its own data centre and well specified data protection practices. This section of the Global Birth Defects website has a number of instruction videos to help you to use the app. For training materials to help you to design and operate congenital anomaly surveillance, see the Global Birth Defects inventory of resources: Registration Manuals/Software • Global Birth Defects (tghn.org) and Training • Global Birth Defects (tghn.org).
Watch this page for updates
(last updated on 28 June 2022)