An open access knowledge platform, providing scientific and evidence-based information for health professionals working in the field of breastfeeding and breastmilk Read more
*Webinar* Pioneering research: scientists united in global effort to combat Zika
Join us for expert insights into how we responded to the Zika outbreak; what investigations revealed about virus biology and mosquito genetics; and how our team approached modelling analysis. 24th February – register now!Learn more
*Webinar* Lessons from a Zika Network to Covid-19 response and beyond
Join us for an insightful webinar to learn how a research network set-up in response to the Zika epidemic is translating meaningful lessons and expertise to the Covid-19 pandemic. 19th August - Book your place now!Learn more
Strengthening birth defect surveillance systems globally.Learn more
Providing an up-to-date inventory of resources and tools.Learn more
Global Birth Defects Surveillance App
Creating solutions to the challenges surveillance poses: a first-of-its-kind, easy-to-use AppLearn more
Global Birth Defects App wins major digital health award
We are delighted that our Global Birth Defects App, which is available to download now, has recently achieved a Merit Award in the 4th Commonwealth Digital Health Awards 2020 in the Maternal and Neonatal Health category.
DLeke Aminkeng, who presented the App to the award panel along with Katy Karnell, commented: “It is wonderful to have our App recognised at such a prestigious Awards ceremony, which we hope will help to spread news of the App to even more people."
The App is aimed at healthcare professionals working in congenital anomaly surveillance and research in lower resource countries and it helps them to code and categorise birth defects, allowing for better recognition, description and coding of congenital anomalies, which may otherwise go undocumented or unmonitored.
For more information about the app or to download visit: The Birth Defects App
Come listen to the voices and personal experiences of people affected by birth defects. GBD has just added a new section in our comprehensive resource inventory called "Voices." Here you will find videos featuring a variety of people and families ... Read more
In support of those on the front lines in the coronavirus pandemic, the Kosala Duwella Foundation for Children with Special Needs created this message
April 6, 2020
Join us on March 3, 2020 at 11AM GMT for an interactive webinar to mark World Birth Defects Day (#manybirthdefects1voice). We will discuss your feedback and questions as well as demonstrate the app’s capabilities. The Basic Version of the app ... Read more
We wish it were no longer necessary to repeat the phrase, “Take folic acid before becoming pregnant,” but regrettably, this knowledge and practice should continue to be widely promoted. Folic acid is key in reducing the risk of children born ... Read more
Dos importantes redes colaborativas sobre el estudio de anomalías congénitas en América Latina se reunieron en noviembre pasado. La 4a Reunión de la Red Latinoamericana de Malformaciones Congénitas (ReLAMC) se celebró junto con la 51a Reunión Anual del Estudio Colaborativo ... Read more
Two prominent networks that study congenital anomalies in Latin America met last November. The 4th Meeting of the Latin American Network of Congenital Malformations (ReLAMC) was held in conjunction with the 51st Annual Meeting of Latin American Collaborative Study of ... Read more
In our effort to constantly update our comprehensive resource inventory, we have just added into our section, Information for parents (click and scroll to the bottom of this page), links to the United State's clearinghouse for newborn screening information. This ... Read more
The first of its kind Global Birth Defects Description and Coding (GBDDC) app is now live, offering a wealth of expert information at the touch of a smartphone. The app contains images of major externally visible birth defects, with definitions ... Read more
Professor Helen Dolk is on the go, taking the Global Birth Defects app to our partners and interested health care providers in Latin America. She is one of the leads on our GBD initiative and a champion for mainstreaming birth ... Read more
Zika surged onto the world stage in 2015 in Brazil and within the next two years, hundreds of thousands of people had been infected and more than 3,500 babies were estimated to have experienced Zika-related birth defects in Latin America. ... Read more
Our Global Birth Defects Research Fellow, Dr Leke Aminkeng, returned from Bratislava, Slovakia last week invigorated. Why? Because his presentation about our Birth Defects App was met with great enthusiasm and interest from conference participants. Read more
We are always updating and expanding our comprehensive resource inventory to ensure it contains the tools you seek in order to develop or enhance your local surveillance system. Today, under our Registration Manuals/Software section, we added a downloadable curriculum for ... Read more
Phase I testing of our App began June 1 and continues throughout this month. During this phase, expert clinician reviewers will download, register, and use the Basic Version of the App. These reviewers will provide feedback through a questionnaire that ... Read more
Have you heard about the birth surveillance network in Latin America called ECLAMC? ECLAMC stands for Estudio Colaborative Latino Americano de Malformaciones Congénitas—Latin American Collaborative Study of Congenital Malformations. Their network of hospitals voluntarily register infants with malformations. Their approach ... Read more
Did you know that our website contains a comprehensive resource inventory for improving congenital anomaly surveillance in low-resource areas? We have a section dedicated to registration manuals and software. If you are a programme manager in a health surveillance system, ... Read more
February 28, 2019 - The newly launched Global Birth Defects website has been funded by ZikaPLAN. We are therefore happy to mark World Birth Defects Day by highlighting actions to address birth defects caused by the Zika virus. Today, we ... Read more
February 25, 2019 - Join the World Birth Defects Day Twitter Chat on Friday, March 1 at 11am. It is a bilingual chat hosted by the March of Dimes. Read more
Welcome. See our inventory of birth defect surveillance tools and resources.