Global Birth Defects App wins major digital health award

We are delighted that our Global Birth Defects App, which is available to download now, has recently achieved a Merit Award in the 4th Commonwealth Digital Health Awards 2020 in the Maternal and Neonatal Health category.

DLeke Aminkeng, who presented the App to the award panel along with Katy Karnell, commented:  “It is wonderful to have our App recognised at such a prestigious Awards ceremony, which we hope will help to spread news of the App to even more people."

The App is aimed at healthcare professionals working in congenital anomaly surveillance and research in lower resource countries and it helps them to code and categorise birth defects, allowing for better recognition, description and coding of congenital anomalies, which may otherwise go undocumented or unmonitored.

For more information about the app or to download visit: The Birth Defects App

New Voices

April 29, 2020

Come listen to the voices and personal experiences of people affected by birth defects. GBD has just added a new section in our comprehensive resource inventory called "Voices." Here you will find videos featuring a variety of people and families ... Read more

In support of those on the front lines in the coronavirus pandemic, the Kosala Duwella Foundation for Children with Special Needs created this message  

April 6, 2020

Engage with us on World Birth Defects Day

February 19, 2020

Join us on March 3, 2020 at 11AM GMT for an interactive webinar to mark World Birth Defects Day (#manybirthdefects1voice). We will discuss your feedback and questions as well as demonstrate the app’s capabilities. The Basic Version of the app ... Read more

It is World Folic Acid Awareness Week

January 7, 2020

We wish it were no longer necessary to repeat the phrase, “Take folic acid before becoming pregnant,” but regrettably, this knowledge and practice should continue to be widely promoted. Folic acid is key in reducing the risk of children born ... Read more

Construyendo una vigilancia robusta en toda América Latina

11 diciembre 2019

Dos importantes redes colaborativas sobre el estudio de anomalías congénitas en América Latina se reunieron en noviembre pasado. La 4a Reunión de la Red Latinoamericana de Malformaciones Congénitas (ReLAMC) se celebró junto con la 51a Reunión Anual del Estudio Colaborativo ... Read more

Building robust surveillance throughout Latin America

December 11, 2019

Two prominent networks that study congenital anomalies in Latin America met last November. The 4th Meeting of the Latin American Network of Congenital Malformations (ReLAMC) was held in conjunction with the 51st Annual Meeting of Latin American Collaborative Study of ... Read more

Baby's First Test

December 5, 2019

In our effort to constantly update our comprehensive resource inventory, we have just added into our section, Information for parents (click and scroll to the bottom of this page), links to the United State's clearinghouse for newborn screening information. This ... Read more

Free Birth Defects Training App Goes Live

October 30, 2019

The first of its kind Global Birth Defects Description and Coding (GBDDC) app is now live, offering a wealth of expert information at the touch of a smartphone. The app contains images of major externally visible birth defects, with definitions ... Read more

On the Go

October 24, 2019

Professor Helen Dolk is on the go, taking the Global Birth Defects app to our partners and interested health care providers in Latin America. She is one of the leads on our GBD initiative and a champion for mainstreaming birth ... Read more

New Resource Added

August 13, 2019

We are always updating and expanding our comprehensive resource inventory to ensure it contains the tools you seek in order to develop or enhance your local surveillance system. Today, under our Registration Manuals/Software section, we added a downloadable curriculum for ... Read more

Phase I testing begins

June 3, 2019

Phase I testing of our App began June 1 and continues throughout this month. During this phase, expert clinician reviewers will download, register, and use the Basic Version of the App. These reviewers will provide feedback through a questionnaire that ... Read more

Have You Heard of ECLAMC?

May 28, 2019

Have you heard about the birth surveillance network in Latin America called ECLAMC? ECLAMC stands for Estudio Colaborative Latino Americano de Malformaciones Congénitas—Latin American Collaborative Study of Congenital Malformations. Their network of hospitals voluntarily register infants with malformations. Their approach ... Read more

Looking for Resources?

May 15, 2019

Did you know that our website contains a comprehensive resource inventory for improving congenital anomaly surveillance in low-resource areas? We have a section dedicated to registration manuals and software. If you are a programme manager in a health surveillance system, ... Read more

Workshops Promote Zest for Fun

February 28, 2019 - The newly launched Global Birth Defects website has been funded by ZikaPLAN. We are therefore happy to mark World Birth Defects Day by highlighting actions to address birth defects caused by the Zika virus. Today, we ... Read more

The launch of the Global Birth Defects Website on 12 December 2018!

Welcome. See our inventory of birth defect surveillance tools and resources.