News

The 77th World Health Assembly Resolution 2024 addresses the diagnosis, management and long-term care of children with birth defects

17 September 2024 

Resolution WHA77.5, of 1 June 2024  “Accelerating progress towards reducing maternal, newborn and child mortality in order to achieve Sustainable Development Goal targets 3.1 and 3.2”

invites Member States “to consider implementing a universal newborn screening programme including comprehensive birth defect screening, including specific needs and considerations for diagnosis, management and long-term care of children with birth defects.”

This is a most welcome and major step forward in preventing mortality and child disability relating to birth defects in Low and Middle Income Countries.

Accelerating progress towards reducing maternal, newborn and child mortality in order to achieve Sustainable Development Goal targets 3.1 and 3.2 (who.int)

New feedback on using the Global Birth Defects app in South Africa

5 June 2024

Watch here Feedback • Global Birth Defects (tghn.org)

Nursing staff, Siviwe Hendrick, Lumka Vicks and Anesipho Dlamenzi at a primary level, Gugulethu Midwife Obstertric Unit in South Africa, discuss their experiences of using the Global Birth Defects App.

Khanyisa Mandondo, a nurse at Ubomi Buhle, who regularly uses the Global Birth Defects App to record cases, discusses how easy it is to download and use the App.

If you would like to add a feedback video regarding your use of the Global Birth Defects App, please contact globalbirthdefects@tghn.org 

Launch of the RELAMC Website 

26 July 2023 

A launch event was held on July 3, 2023 for the RELAMC website www.relamc.org

RELAMC is the Latin American network for congenital anomaly surveillance.

The website describes the network and the member registries, allows the user to obtain publicly available prevalence data tables, and provides the platform for data submission for member registries.

The launch event was co-organised by RELAMC and the Coordenação-Geral de Informações e Análises Epidemiológicas, Ministério da Saúde, Brazil. Speakers included Ieda Orioli, Theresa Diaz, Helen Dolk, Boris Groisman, Guillermo Macías,  Marli Souza Rocha,  Jorge López Camelo and Ignacio Zarante.

Congratulations to RELAMC for this milestone!

                  

International Conference for Birth Defects in Developing Countries, Chile, March 2023

3 March 2023

Caroline Osoro (pictured) talked to new users about the use of the Global Birth Defects app, and how the MiMBA project has added an expert review platform which is now available to all users.

Emma Kalk, Caroline Osoro, Robert Serunjogi and Modiegi Diseko (pictured) represented the new SubSaharan Congenital Anomalies Network (sSCAN).