Training programmes/frameworks for congenital anomaly surveillance
A collection of freely available courses covering: coding, facilitating courses, surveillance methodology, implementation of programmes in low resource settings and developing strategies to prevent birth defects.
Ubomi Buhle Training Lessons
Ubomi Buhle is a national project aimed at improving our understanding of what exposures during pregnancy, such as medicines, substances and diseases, can result in poor birth outcomes e.g. birth defects, low birth weight, stillbirth, premature birth and neonatal death. At the same time, the project aims at health system strengthening. A set of training lessons (powerpoint slides) cover an introduction to the national exposure registry, How to take an accurate pregnancy exposure history, Safer Prescribing in Pregnancy, and Methods of Gestational Dating. Soon to be added are lessons on Congenital disorders; How to examine a newborn or stillborn baby; Introduction to counselling and bereavement support; How to record a congenital disorder using the Global Birth Defects notification app
WHO ICD-10 Training Tool
This course provides an overview of ICD-10 coding and can be used by physicians and those in a managerial role alike.
WHO Birth defects surveillance training: facilitator's guide
The goal of this course is to provide participants with the foundational skills needed to begin the development, implementation and ongoing improvement of a congenital anomalies surveillance programme, in particular for countries with limited resources. It focuses on the methodology needed to develop either population-based or hospital based surveillance programmes. A set of congenital anomalies will be used as examples throughout this course. The specific examples used are typically severe enough that they would probably be captured within the first few days after birth, have a significant public health impact and, for some of them, have the potential for primary prevention.
ICBDSR Online Self-Paced Course on Birth Defect Surveillance and Prevention
The New edition: extensively revised and expanded, with videos, quizzes, discussion forum, and publications/resources. Developed for clinicians, epidemiologists, public health professionals, and anyone interested in understanding birth defects and improving their prevention and care. Self-paced: go at your own pace, in your own time zone, on your schedule. Developed by the International Center on Birth Defects (ICBD) and supported in part by funding from the National Center on Birth Defects and Developmental Disabilities, US Centers for Disease Control and Prevention through Agreement 2016-2017 with Task Force for Global Health. Language: English and Spanish versions.
- The newborn exam (focus on congenital anomalies)
- Selected major birth defects: from embryology to surveillance and prevention
- Congenital infections as teratogens
- Teratogenic medications and exposures
- Short course on microcephaly (clinical evaluation, neuroimaging, genetics, surveillance) including basic elements of Zika assessment and response
World Health Organization, Regional Office for South-East Asia (WHO-SEARO), Hospital-based Birth Defects Surveillance, Facilitator Guide
The objective of this training course on hospital-based birth defects surveillance (BDS) is to provide participants with the foundational skills needed to begin, implement and progressively improve hospital based birth defects surveillance. Hospitals are expected to initially include externally visible and major birth defects in the surveillance plan. A set of such birth defects will be used as examples throughout this course. These defects are typically severe enough that they would probably be captured within the first few days after birth, have a significant public health impact and, for some of them, have the potential for primary prevention.
The Facilitator’s guide contains what you, as a facilitator, need in order to lead participants through the course. It contains detailed instructions on how to conduct each session. This is your most essential tool as a facilitator.
National Human Genome Research Institute (NHGRI)
The NHGRI is a division of the National Institutes of Health (NIH). It was established to carry out the role of the NIH in the International Human Genome Project. The website contains online education toolkits, talking glossaries of genetic terms (which can also be downloaded as Apps), fact sheets, teaching resources, a genomic medicine lecture series as well as in depth information on the funding and planning of research activity.
Online Zika Training
This eLearning course, available in English and Spanish, was made possible through support provided by the Bureau for Global Health, U.S. Agency for International Development, under the terms of an Interagency Agreement with the United States Centers for Disease Control and Prevention. The online resource consists of six training units: Introduction to Birth Defects, Lessons Learned from the Zika Outbreak 2015-2016, Zika - Case Definitions and Diagnostics Guidelines, Microcephaly and Congenital Zika Syndrome, and use of data for public health purposes.
The Global Health Training Centre's Maternal Infections Course
The Global Health Network's Global Health Training Centre brings a wealth of training materials from across its network. This Maternal Infections course is an interactive course for health professionals created by the Maternal Health Task Force (MHTF), Oxford Maternal & Prenatal Health Institute (OMPHI), The Global Health Network (TGHN), and the Geneva Foundation for Medical Education and Research (GFMER). The course duration is estimated at 7 hours.
This is an open access online community of health care professionals sharing best practices from all resource settings around the world through innovative collaboration and digital learning technologies. Here, you can access content, including accredited and non-accredited courses, expert lectures and demonstrations, interactive device simulators, protocols and medical calculators.
CLAP (Latin American Center for Perinatology, Women and Reproductive Health) of WHO-PAHO and March of Dimes produced "Perinatal Infections"
This downloadable PDF is an educational curriculum for health personnel on perinatal infections transmitted by the mother to her infant. This 2008 publication contains information on: the pathogen and the disease; burden of problem and burden of disease in the regions of Latin America and the Caribbean; diagnosis; and, prevention and treatment interventions.
This website provides a variety of free online courses, including one on Global Health and Disability. This course is supported by the London School of Hygiene & Tropical Medicine and the International Centre for Evidence in Disability.
Birth Defects Surveillance Course
This course is intended to be used as a teaching guide and introduction to the WHO/CDC/ICBDSR Birth defects surveillance: a manual for programme managers. The facilitator will see in this guide that there are specific references to sections of the manual.
ConcePTION Core evidence elements
ConcePTION Core evidence elements for generating medication safety evidence for pregnancy using population-based data contains extensive guidance on Congenital Anomalies is available here
Toolkit on Disability for Africa - Culture, Beliefs and Disability
United Nations Division for Social Policy and Development (DSPD). (2016). Toolkit on Disability for Africa – Culture, Beliefs and Disability. UN.