Training programmes/frameworks for congenital anomaly surveillance

A collection of freely available courses covering: coding, facilitating courses, surveillance methodology, implementation of programmes in low resource settings and developing strategies to prevent birth defects.

WHO ICD-10 Training Tool

This course provides an overview of ICD-10 coding and can be used by physicians and those in a managerial role alike.

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WHO Birth defects surveillance training: facilitator's guide

The goal of this course is to provide participants with the foundational skills needed to begin the development, implementation and ongoing improvement of a congenital anomalies surveillance programme, in particular for countries with limited resources. It focuses on the methodology needed to develop either population-based or hospital based surveillance programmes.  A set of congenital anomalies will be used as examples throughout this course. The specific examples used are typically severe enough that they would probably be captured within the first few days after birth, have a significant public health impact and, for some of them, have the potential for primary prevention.

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ICBDSR Online Self-Paced Course on Birth Defect Surveillance and Prevention

The New edition: extensively revised and expanded, with videos, quizzes, discussion forum, and publications/resources. Developed for clinicians, epidemiologists, public health professionals, and anyone interested in understanding birth defects and improving their prevention and care. Self-paced: go at your own pace, in your own time zone, on your schedule. Developed by the International Center on Birth Defects (ICBD) and supported in part by funding from the National Center on Birth Defects and Developmental Disabilities, US Centers for Disease Control and Prevention through Agreement 2016-2017 with Task Force for Global Health. Language: English and Spanish versions.

Topics include:

  • The newborn exam (focus on congenital anomalies)
  • Selected major birth defects: from embryology to surveillance and prevention
  • Congenital infections as teratogens
  • Teratogenic medications and exposures
  • Short course on microcephaly (clinical evaluation, neuroimaging, genetics, surveillance) including basic elements of Zika assessment and response

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World Health Organization, Regional Office for South-East Asia (WHO-SEARO), Hospital-based Birth Defects Surveillance, Facilitator Guide

The objective of this training course on hospital-based birth defects surveillance (BDS) is to provide participants with the foundational skills needed to begin, implement and progressively improve hospital based birth defects surveillance. Hospitals are expected to initially include externally visible and major birth defects in the surveillance plan. A set of such birth defects will be used as examples throughout this course. These defects are typically severe enough that they would probably be captured within the first few days after birth, have a significant public health impact and, for some of them, have the potential for primary prevention.

The Facilitator’s guide contains what you, as a facilitator, need in order to lead participants through the course. It contains detailed instructions on how to conduct each session. This is your most essential tool as a facilitator.

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National Human Genome Research Institute (NHGRI)

The NHGRI is a division of the National Institutes of Health (NIH).  It was established to carry out the role of the NIH in the International Human Genome Project.  The website contains online education toolkits, talking glossaries of genetic terms (which can also be downloaded as Apps), fact sheets, teaching resources, a genomic medicine lecture series as well as in depth information on the funding and planning of research activity.

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Geneva Foundation for Medical Education and Research

The Geneva Foundation for Medical Education and Research (GFMER) is a non-profit organization established in 2002. It is supported by the Republic and Canton of Geneva, the Department of Social Affairs of the City of Geneva and other Swiss and international institutions. The Foundation works in close collaboration with the World Health Organization (WHO). The overall objectives of the Foundation are to promote and develop health education and research programs. Materials on the website include; power point presentations, links to free medical journals, guidelines and key papers, and training courses.

Congenital anomaly reporting guidelines of a number of national systems are given here.

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Online Zika Training

This eLearning course, available in English and Spanish, was made possible through support provided by the Bureau for Global Health, U.S. Agency for International Development, under the terms of an Interagency Agreement with the United States Centers for Disease Control and Prevention. The online resource consists of six training units: Introduction to Birth Defects, Lessons Learned from the Zika Outbreak 2015-2016, Zika - Case Definitions and Diagnostics Guidelines, Microcephaly and Congenital Zika Syndrome, and use of data for public health purposes.

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OPEN Pediatrics

This is an open access online community of health care professionals sharing best practices from all resource settings around the world through innovative collaboration and digital learning technologies.  Here, you can access content, including accredited and non-accredited courses, expert lectures and demonstrations, interactive device simulators, protocols and medical calculators.

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